Today was not such a good Monday.

It started with me being an eejit (that’s Scottish for idiot by the way) and not going to bed till 2am. My own fault I know… you’d think I’d know better by now, right?

Then I was woken at about 4.30am by a crying Max. I think he thought it was time to get up as the birds were tweeting and it was getting light.

So down the stairs I went and got him some milk, hoping that’d calm him down.

No such luck. Crying ensued as I closed the door on him.

Somehow Zack managed to sleep through it all!


Then this afternoon, a lovely lady called Marie came over (for the second time) to help me with filling out Max’s DLA form (Disability Living Allowance), which lead to us having to write down all the negatives of living with Max.

That… that wasn’t so much fun.

I don’t like thinking about all the negatives of living with my lil man.

I normally try to focus on the positives.

Like that he’s been asking for milk with the PECS card EVERY time now. With a little prompting, but still, YAY!

And that he’ll give me a cuddle and a kiss goodnight now.

And the way he gets Zack to chase him when he’s out in the garden, and giggles the WHOLE time.


Then there was this evening, which has consisted of period cramps.

What a wonderful Monday eh?

Tuesday’s gotta be better, right?


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  1. June 14, 2010 / 10:55 pm

    Yes, tomorrow is going to way way better.
    Sending hugs from NYC

  2. June 15, 2010 / 3:07 am

    Tomorrow will be heaps better, I’m sure. xo

  3. June 15, 2010 / 5:10 am

    Yep, Tuesdays are normally nicer days. Hope your tummy is feeling better.

  4. June 15, 2010 / 5:28 am

    It better be.; ) Hugs Marylin.xox

  5. June 15, 2010 / 7:09 am

    Happy Tuesday to you! That’s pants having to actively think of the negatives of living with your babe – having said that if anyone asked me about the negatives of living with my arsey teenagers this morning I’d be pretty hard to shut up – a shovel to my head might work…

  6. June 15, 2010 / 9:35 am

    Thanks sweety 🙂 xx

  7. June 15, 2010 / 9:35 am

    Hehe good idea… might do that this evening! 😉

  8. June 15, 2010 / 9:35 am

    Well, so far at least I haven’t woken up with the sh!ts! >_< lol

  9. June 15, 2010 / 9:39 am

    Thanks Ronnie, no dodgy tum today, just a bad bad headache, and a screamy Max. lol 🙂

  10. June 15, 2010 / 9:43 am

    Hehe damn right! 😉

  11. June 15, 2010 / 9:44 am

    Hehe, trust me there are days when I feel like that too, but I’ve managed to stop most of the negative thinking to do with Max and his difficulties, most of the time!

  12. June 15, 2010 / 5:11 pm

    It is hard to focus on the negatives, I remember it well, but it is for a reason and when the form is done it will be over. I felt a bit like I was betraying my lil fella by saying that stuff when I love him dearly and want to have him. Like I said, hard.

    Re early wake ups, we had to tape black plastic bags over the windows, to supplement the blackout curtain linings, but it worked 😀

    Hope you are feeling ok now, big hug for you.


  13. June 15, 2010 / 8:31 pm

    Dammit, I’m sorry yesterday was so shite. Hope today was better. ((((hugs))))

  14. June 15, 2010 / 8:37 pm

    There is nothing more depressing than being forced to think about and actually document the negative things that we spend all our time trying to think of as positive. Believe me, I know what you’re talking about. It sucks.
    Glad you’re over the… Immodium issue. 🙂

  15. June 15, 2010 / 9:18 pm

    Yeah, the fact that the blind in their room broke really isn’t helping at the moment! >_<

    Feeling better today, other than this flipping migraine, however now it’s just a dull ache thank god!

  16. June 15, 2010 / 9:18 pm

    Thanks sweety, today has been better! x

  17. June 15, 2010 / 9:19 pm

    LOL I’m glad I’m over it too!

    I know it’s for the best, means that Max will get what he needs etc, but still like you say, it’s hard!


  18. June 15, 2010 / 9:19 pm

    It has been, thanks honey. xx

  19. June 16, 2010 / 12:16 am

    Thanks Kelley, I know it needs to be done, just hard, as you know! xx

  20. June 16, 2010 / 7:48 am

    Being an old timer filling out these evil evil forms, believe me it gets easier. YOU know that there are wonderful times but in order to have more and get the supports and help you both need you have to paint a picture of a hellion.

    Well not quite, but years from now you will remember that first time and realise that it was the best thing you could do for him.

  21. WarsawMommy
    June 17, 2010 / 7:31 am

    And?? How was the rest of the week? I hope your life took a step up 😉

  22. June 19, 2010 / 11:02 am

    Thanks sweety, it wasn’t too bad, at least my period’s over now! hehe 🙂
    I am glad this week is over though. One week closer to the lazy summer holidays!

  23. June 20, 2010 / 8:36 pm

    When Mum was sick she wanted me to apply for the carers payment for looking after her. She nagged me about it heaps.I even went as far as getting the paperwork sent out but There was one question though that I just could not tick the box for and that was,
    Is this illness terminal? Will the person in your care be dead within three months?

    What sort of question is that, the beaurocratic fuckers? Mum knew that it was that question that was stopping me and so I didn’t apply. even though she kept on nagging me about it.

  24. June 20, 2010 / 11:17 pm

    I had to read over that bit too, I felt awful that I was relieved I didn’t have to fill it in. How awful it must be, and mine was for a children’s DLA application.
    It’s an awful question to have to ask isn’t it?
    I hope you’re all ok sweety, I know this is gonna be a really tough time of year for you all. xxx

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