This is not the Happy New Year post you were looking for… thanks autism!

Hello! Happy New Year!
And Happy Hogmanay from Zack and I! <3

Normally I’d start off the year with a Word of the Year post or something similar, but I thought I’d do something different today as there’s been a bit of a difficulty in our house since thursday, and I figured that I really do want to be honest about what life is like with a child who has autism.

Now, don’t get me wrong, Max has handled Christmas and New Year really well all in all – even though he wasn’t well for Christmas week!

He managed to actually sit at the table for (2nd) Christmas dinner!

We’ve even been watching the Harry Potter movies of an evening and, although there’s been about 10 minutes protest at the start, he’s soon settled down and been happy to go between watching it with Zack and I, and going to play with his toys or the ipad.

But since Thursday it’s all started to get a wee bit too much for my wee man.

He’s been getting really angry every time I try to sit in the living room with him.

I mean, screaming and shouting no no no, and none of my usual tricks are working.

It’s been a change of pace with the holidays, and my wee Max thrives on the structure and routine of the school term.

Today he just could not calm himself down, and two hours later, I gave in and left the living room.

He was just getting into more and more of a state, and I was worried he might try to hurt himself, or me, or Zack.

I was starting to feel the frustration of not being able to figure out how to calm him down.

So I chose not to keep on with the battle.

Not today.

Here’s a 25 second clip of what he was like constantly for the 2 hours I was in the living room (warning – turn your volume down!):

Nothing could console him except me leaving the room.

As soon as I closed the door behind me, it stopped!

Most of the time, my little man does amazingly well, but there are times when everything just gets too much.

And that’s hard.

And something that I felt I needed to share with you out there.

Even when things are going well, that doesn’t mean that they aren’t peppered with times like this.

Just two more days to go, then he’s back at school. Hopefully that’ll help him feel more relaxed. I know I will!

And to all of you who think “I don’t know how you cope”… think of your baby. Your son, your daughter. Think of the love you have for them. You’d do whatever it takes. That’s what I’m doing too.

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  1. January 5, 2014 / 8:41 pm

    *big hugs* I hope things ease up again once you’re all back in the school routine. Lots of love xxx

    • Marylin
      January 5, 2014 / 8:46 pm

      Thanks hon! He’s been much better today, which is just as well as I seem to have caught this blasted cold that’s doing the rounds up here. Back to normality tomorrow. ๐Ÿ˜€ xx

  2. January 5, 2014 / 9:29 pm

    Oh my darling what can I say?Thinking of you and sending much

    • Marylin
      January 5, 2014 / 10:07 pm

      Thank you sweetheart x

  3. January 5, 2014 / 10:35 pm

    So sad to watch especially when you don’t know why, hopefully he will be calmer again tomorrow xx

    • Marylin
      January 5, 2014 / 11:28 pm

      He was much calmer today, which was most likely because I didn’t try to spend much time in the living room! Back to the usual routine tomorrow- thank goodness! x

  4. January 6, 2014 / 9:49 am

    Poor wee chap – and you too. I think Christmas is tough enough for NT children with all the upheaval, treats and surprises. Autistic kids stand no chance. Plus he’s had all the effort of controlling himself during the Christmas stuff. Hopefully normal routines will help soon. x

    • Marylin
      January 6, 2014 / 11:43 am

      I know, right? He managed over Christmas with his dad, and then a 2nd Christmas here *so* well – even managed to sit with us for our Christmas Dinner! He’d never been able to do that before!And then dealing with me taking the tree down and moving some furniture around in the living room. Poor wee dude. Back to normality today though. I’m sure we’ll be back to normal within a week or so. x

  5. January 7, 2014 / 2:22 pm

    and we know you’re doing a great job. Don’t forget to give yourself the breaks too. The build up to, then come down from, special events or times is always tricky – think we become more autistic as we long for that routine that settles everything, huh?! Wishing you a happy 2014, take care x

    • Marylin
      January 7, 2014 / 2:52 pm

      Aww thank you sweety!I totally agree. Always look forward to the break, but I love getting back to the usual routine! x

  6. January 9, 2014 / 3:58 pm

    Poor boy. He just looks so lost. Hope things are getting back to normal for you now.

    • Marylin
      January 9, 2014 / 6:38 pm

      Thanks hon, things have been much better since school’s been back on the schedule. ๐Ÿ™‚

  7. January 15, 2014 / 9:09 am

    Awww man.. The wee soul… And you too! Have things called down even more now? I do hope so.

    • Marylin
      January 15, 2014 / 12:28 am

      Oh yes! Things are much more normal now that we’re back to the usual school routine, thank goodness! ๐Ÿ™‚

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